Ep 71: From Anger to Advocacy, Lessons Learned from a Pancreatic Cancer Diagnosis - The Patient From Hell Podcasr

Ep 71: From Anger to Advocacy, Lessons Learned from a Pancreatic Cancer Diagnosis - The Patient From Hell Podcasr

Ep 71: From Anger to Advocacy, Lessons Learned from a Pancreatic Cancer Diagnosis - The Patient From Hell Podcasr

In this episode, we sit down with Roger Royse, a Silicon Valley startup lawyer and pancreatic cancer patient, to discuss his remarkable journey through diagnosis, treatment, and advocacy. Roger opens up about navigating the complexities of the healthcare system, the emotional highs and lows of his battle, and the lessons he’s learned along the way. He emphasizes the importance of being proactive, questioning medical assumptions, and seeking multiple expert opinions.

Roger also delves into the emotional challenges of a cancer diagnosis, from anger and frustration to the importance of resilience and community support. He shares how he has channeled his experiences into advocacy, including his involvement with the Cancer Patient Lab and his work supporting cancer therapy startups. Throughout the conversation, Roger offers invaluable advice for both patients and their loved ones on taking personal responsibility and fostering meaningful communication.

About Our Guest:
Roger Royse is a Silicon Valley startup lawyer and pancreatic cancer survivor. Diagnosed with stage 2B pancreatic adenocarcinoma in July 2022 after taking a multi-cancer early detection (MCED) blood test, Roger underwent six months of chemotherapy, surgery, and an experimental cancer vaccine. As of July 2024, he has no evidence of disease.

Roger has long been involved in cancer advocacy, serving on the board of CancerPatientLab.org, a nonprofit focused on evidence-based therapies, and creating a community for cancer therapy startups through CancerStartup.com. He has also testified before an FDA Advisory Committee on multi-cancer early detection and has been featured in the Wall Street Journal for his advocacy efforts. Roger strongly believes in patient empowerment, urging individuals to take an active role in their treatment and decision-making based on evidence-based therapies.

Key Moments:

  • Roger’s Approach to Healthcare – Roger explains his meticulous approach to treatment, comparing his preparation for doctor visits to studying for finals—complete with charts and Gantt charts. His strategy of questioning every assumption and seeking multiple opinions has been key to his survival.

  • Emotional and Psychological Insights – Roger shares his perspective on the emotional rollercoaster of cancer, balancing defiance and fear, optimism and realism. He also touches on the isolation many patients face and the grief of losing friends within the cancer community.

  • Advice for Patients and Loved Ones – For newly diagnosed patients, Roger stresses the need to take personal responsibility and stay proactive in decision-making. He also offers guidance for caregivers, highlighting the importance of support without unsolicited advice and thoughtful communication.


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Disclaimer: All content and information provided in connection with Manta Cares is solely intended for informational and educational purposes only.  This content and information is not intended to be a substitute for medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.